Start typing and press
Enter to search

About Me

My name is Joni Marie. I am a nurse and a mother to beautiful baby named Dana Gabrielle. She was born on January 8, 2015 with severe congenital scoliosis which we found out even in utero. After 3 months that I gave birth to her, she developed pulmonary hypertension and had to be sent to the hospital.…

What is Congenital Scoliosis?

Congenital Scoliosis is a term used to describe deformity of the spine which resulted from malformation of vertebrae. Dana has currently 72 degrees curvature. Research shows that it happens early in development, about 5th or 6th weeks of formation. There has been no strong researches or evidences of it related to heredity either. Some are not…

The TRILOGY Portable Ventilator

Due to Dana’ severe spine curvature (she developed also a Restrictive Lung Disease. Her scoliosis resulted to her having left lung hypoplasia, which means her left lung has not grown . Thus, she needed a ventilator to breathe better. She is currently on a TRILOGY PORTABLE VENTILATOR 100 with the following settings:…

Day 18: Baby steps to healing

By: joni marie April 22, 2015April 22, 2015

UncategorizedLeave a Comment

Update: Baby dana has diarrhea. She had a better night last night though. Her blood gases and xray looks a little better. Her paralytic agent was changed to the one she had before coz she seemed to have been building tolerance. Before it was changed, the dose was already high buy she would still wiggle,…

Day 17 : Hope

By: joni marie April 20, 2015April 20, 2015

Healthcare, Parenting, Pulmonary Hypertensionchildren's medical center dallas, cmc dallas, Dana Gabrielle Canonigo, parenting, parenting101, ph crisis, pulmonary hypertension, scoliosis, vsdLeave a Comment

Update: Baby Dana is slowly weaned from the oscillator (high pressure ventilator) ..from mean a pressure yesterday (sunday) of 24 and today she is down to 21. Oxygen of 62% yesterday and today its 53%. Her oxygen saturation is above 85’s. They had to reposition the et tube earlier 5am because chest xray showed it…

Day 15: Baby Dana

By: joni marie April 18, 2015April 20, 2015

Healthcare, Love, Parenting, Pulmonary Hypertensionchildren's medical center dallas, cmc dallas, congenital scoliosis, Dana Gabrielle Canonigo, love, mother's love, parenting, parenting101, pulmonary hypertension, scoliosis, vsdLeave a Comment

Update: She has had stable vital signs so far and she been tolerating the nurses giving her a bath or changing nappies. Her heart rate and blood pressure raises on stimulation still but very few moments that it decreases below normal. She has been given boluses of sedative pre-stimulation now they started her with oral…

By: joni marie April 18, 2015April 20, 2015

Baby Dana, Love, Parenting, Pulmonary Hypertensionchildren's medical center dallas, cmc dallas, congenital scoliosis, love, parenting, parenting101, pulmonary hypertension, scoliosis, vsd4 Comments

Just because the pain is unbearable, I can’t go back and re-tell the story of what my baby had been through and how we are now. We are hopeful and drawing our strength from God and from the love from family and friends. Every prayer makes us and our baby stronger. My sister has been…

Giving Birth: I Had a Wonderful Experience

By: joni marie February 4, 2015October 24, 2017

Happiness, LoveC-section, featured, giving birth, happiness, happy living, pregnancy, tmfhsLeave a Comment

It has been almost 3 weeks since I delivered our beautiful baby Dana Gabrielle Canonigo. But I still remember that day clearly. For first time moms like me, it was a mixture of excitement and nervousness. My experience was more than wonderful because aside from the awe of having a daughter, the people who took…

Happy One year in US..Happy One year of New Life

By: joni marie November 7, 2014October 24, 2017

UncategorizedfeaturedLeave a Comment

November 5, 2013 was the date of departure in my airline ticket to the United States. After 7 long years of waiting, my patience has finally paid off. Now exactly a year after, I look back at this amazing journey. I met new friends that day. I met Len Peradilla, Joan Mateo and JB Reyes…