Raising a Ventilator Dependent-Child with Congenital Scoliosis and Everything Beautiful in Between
Prayers have always worked wonders for her. She will undergo Bronchoscopy and Trach size resizing tomorrow, September 14 at 11:30 am. She is growing that she needs a little longer trach. She has currently a 3.5 Pedi Bivona Flextend TTS (cuffed) and the new one will be 4.0. When you…
Read MoreUpdate: Yesterday, Dana had a fever. No problems with her recent surgeries, trach and g-tube placement. She has had no breathing problems lately. But yesterday until today, she has fever, but she is more calm today. Her heart rate is still elevated though as high as 230 when agitated and…
Read MoreUpdate: Baby Dana is slowly weaned from the oscillator (high pressure ventilator) ..from mean a pressure yesterday (sunday) of 24 and today she is down to 21. Oxygen of 62% yesterday and today its 53%. Her oxygen saturation is above 85’s. They had to reposition the et tube earlier 5am because chest xray showed it…
Read MoreUpdate: She has had stable vital signs so far and she been tolerating the nurses giving her a bath or changing nappies. Her heart rate and blood pressure raises on stimulation still but very few moments that it decreases below normal. She has been given boluses of sedative pre-stimulation now they started her with oral…
Read MoreJust because the pain is unbearable, I can’t go back and re-tell the story of what my baby had been through and how we are now. We are hopeful and drawing our strength from God and from the love from family and friends. Every prayer makes us and our baby stronger. My sister has been…
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