Raising a Ventilator Dependent-Child with Congenital Scoliosis and Everything Beautiful in Between
Happy New Year everyone. For families with children having disabilities, every moment that our kids are healthy and well is happiness to us. I guess all parents are like that. But having a child with complex issues, being able sustain good health and actually start activities like other kids do is more…
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“It’s a production number” is what I usually say when asked how do we travel with Dana. At first, it seemed too much but now, we have gotten used to it. For trach and vent children, it is a must to carry eveything you need to keep the child safe. By the way, today we…
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Prayers have always worked wonders for her. She will undergo Bronchoscopy and Trach size resizing tomorrow, September 14 at 11:30 am. She is growing that she needs a little longer trach. She has currently a 3.5 Pedi Bivona Flextend TTS (cuffed) and the new one will be 4.0. When you…
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Seven wonderful months at home. I can’t believe that I have not blogged that long. God has been really good to Dana. So much have happened and so many changes, but it all boils down to blessings that God has given, with a lot of help from all who prayed. We were discharged…
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Finally, Dana has been transitioned to a home vent called Trilogy. She was previously tried on the other called LTV but she unfortunately didn’t do well with it. This Trilogy, they say, is more suited for her because it gives her breaths the moments she breathes. We are going home with it. And it is…
Read MoreUpdate: Yesterday, Dana had a fever. No problems with her recent surgeries, trach and g-tube placement. She has had no breathing problems lately. But yesterday until today, she has fever, but she is more calm today. Her heart rate is still elevated though as high as 230 when agitated and…
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