Raising a Ventilator Dependent-Child with Congenital Scoliosis and Everything Beautiful in Between
It’s nice having one day everyday to celebrate Thanksgiving where families come home and enjoy the day together. It’s that one day of the year where you celebrate all the blessings you have been thankful for. But really, everyday is Thanksgiving day because there are a lot to be thankful for each day. Like most…
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Finally, Dana has been transitioned to a home vent called Trilogy. She was previously tried on the other called LTV but she unfortunately didn’t do well with it. This Trilogy, they say, is more suited for her because it gives her breaths the moments she breathes. We are going home with it. And it is…
Read MoreUpdate: Baby Dana is slowly weaned from the oscillator (high pressure ventilator) ..from mean a pressure yesterday (sunday) of 24 and today she is down to 21. Oxygen of 62% yesterday and today its 53%. Her oxygen saturation is above 85’s. They had to reposition the et tube earlier 5am because chest xray showed it…
Read MoreUpdate: She has had stable vital signs so far and she been tolerating the nurses giving her a bath or changing nappies. Her heart rate and blood pressure raises on stimulation still but very few moments that it decreases below normal. She has been given boluses of sedative pre-stimulation now they started her with oral…
Read MoreJust because the pain is unbearable, I can’t go back and re-tell the story of what my baby had been through and how we are now. We are hopeful and drawing our strength from God and from the love from family and friends. Every prayer makes us and our baby stronger. My sister has been…
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