Raising a Ventilator Dependent-Child with Congenital Scoliosis and Everything Beautiful in Between
Prayers have always worked wonders for her. She will undergo Bronchoscopy and Trach size resizing tomorrow, September 14 at 11:30 am. She is growing that she needs a little longer trach. She has currently a 3.5 Pedi Bivona Flextend TTS (cuffed) and the new one will be 4.0. When you…
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Seven wonderful months at home. I can’t believe that I have not blogged that long. God has been really good to Dana. So much have happened and so many changes, but it all boils down to blessings that God has given, with a lot of help from all who prayed. We were discharged…
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Finally, Dana has been transitioned to a home vent called Trilogy. She was previously tried on the other called LTV but she unfortunately didn’t do well with it. This Trilogy, they say, is more suited for her because it gives her breaths the moments she breathes. We are going home with it. And it is…
Read MoreUpdate: Yesterday, Dana had a fever. No problems with her recent surgeries, trach and g-tube placement. She has had no breathing problems lately. But yesterday until today, she has fever, but she is more calm today. Her heart rate is still elevated though as high as 230 when agitated and…
Read MoreUpdate: She is now bigger..and that’s not because of fluids. Thank God, baby Dana has been doing well this week. The plan still is to wean her totally from the rest of her iv meds and the ventilator. They have been slowly weaning her this week..really slow to make sure that they won’t have to…
Read MoreShe may be weaned tomorrow from the oscillator to a regular ventilator. Please say a prayer for her, we ask of you. They tried to bag her through the ventilator today to know what pressure they need to adjust the regular vent just incase they wean her off from the oscillator, they were happy that…
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