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Day 73: Fever and Nutrition

By: joni marie June 16, 2015June 17, 2015

Baby Dana, Emotions, Love, motherhood, Parenting, Pulmonary Hypertension, Uncategorizedbaby dana, children's medical center, congenital scoliosis, lungs, pulmonary hypertension, scoliosisLeave a Comment

Update: Yesterday, Dana had a fever. No problems with her recent surgeries, trach and g-tube placement. She has had no breathing problems lately. But yesterday until today, she has fever, but she is more calm today. Her heart rate is still elevated though as high as 230 when agitated and…

Day 35: She Grew

By: joni marie May 9, 2015

Baby Dana, Healthcare, Healthy Living, motherhood, Parenting, Pulmonary Hypertensionbaby dana, children's medical center, hope, pulmonary hypertension, team danaLeave a Comment

Update: She is now bigger..and that’s not because of fluids. Thank God, baby Dana has been doing well this week. The plan still is to wean her totally from the rest of her iv meds and the ventilator. They have been slowly weaning her this week..really slow to make sure that they won’t have to…