About Me

My name is Joni Marie. I am a nurse and a mother to beautiful baby named Dana Gabrielle.

She was born on January 8, 2015 with severe congenital scoliosis which we found out even in utero. After 3 months that I gave birth to her, she developed pulmonary hypertension and had to be sent to the hospital. On the course of her treatment, she was placed with a Tracheostomy tube and a GJ button. Also, at the latter part, she started having seizures due to sepsis. She was diagnosed with Hypoxic-ischemic Encepalopathy and now we are dealing with the deficits she acquired on the brain injury.

With God’s blessing and everyone’s prayers, she is home now on a Trilogy Portable vent, Tube Feeding and seizure medications. Plan of care includes surgical intervention of her spine and lots of therapy.

I am a person full of emotions and thoughts ..my calmness exudes after my simple self-expression. I believe at most times, we search for our own sanctuaries where we can truly express what we feel and what we think of.

I write when I am mad, i write when I am hurt..at most times when I am happy and when I find something interesting. Most of what I write is a product of my own feelings at that particular time it was written. You might be able to identify or not..you might know the stories..and you may have been there when it happened.

If it had been dramatic, I learned with what I had and  I have grown stronger with the aftermath of these emotions. These thoughts and emotions have been all real for me, once in my life, no matter how dramatic it may have sounded.