Raising a Ventilator Dependent-Child with Congenital Scoliosis and Everything Beautiful in Between
My name is Joni Marie. I am a nurse and a mother to beautiful baby named Dana Gabrielle. She was born on January 8, 2015 with severe congenital scoliosis which we found out even in utero. After 3 months that I gave birth to her, she developed pulmonary hypertension and had to be sent to the hospital.…
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Congenital Scoliosis is a term used to describe deformity of the spine which resulted from malformation of vertebrae. Dana has currently 72 degrees curvature. Research shows that it happens early in development, about 5th or 6th weeks of formation. There has been no strong researches or evidences of it related to heredity either. Some are not…
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Due to Dana’ severe spine curvature (she developed also a Restrictive Lung Disease. Her scoliosis resulted to her having left lung hypoplasia, which means her left lung has not grown . Thus, she needed a ventilator to breathe better. She is currently on a TRILOGY PORTABLE VENTILATOR 100 with the following settings:…
Read MoreHappy Valentine’s Day. Flowers make it more special. I feel so much love. 😀
Read MoreCrafter’s Haven in Davao helped me make my wedding invites. This wedding shoppe has a lot of wedding invitation designs to choose from or any cards for any any occasion. I honestly didn’t have a design in mind but I do know that I wanted a pink themed card. I also wanted a simple one…
Read MoreThey say when you get something from someone really special, it wil be kept even if you get to go separate ways. There was this one person who I call my one great love..or the books would probably define it as such. We were young as 9 years old, when we realized that we…
Read MoreT.G.I.Fridays is in Davao..well I have been this place since last year but never had the chance to blog about it. (its easier now with the smart phones .. ) My friend came home from New York and I really wanted us to be in a place that combines local food and food from their…
Read MoreEven before, I would imagine if this place would ever morph into a new place. It always had that “standard” canteen look. But earlier today, my jaw nearly dropped when i saw this place. Davao Doctors Hospital, the city’s leader in health care made a milestone again. The improvements are really a stunner. This cafe,…
Read MoreWe were always an item. The moment we met on 3rd grade, I had a feeling he will always be different from friends. Yes, for some reason those kind of thoughts crossed the mind at an early stage, apart from a lot of what kids do. …
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