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Day 167: Seven Good Days

By: joni marie September 20, 2015October 24, 2017

Seven days to observe her then we go to the pulmonary pediatric floor. That means that if she does not desat or her oxygen sats does not drop below 85% for unexplained reasons, or if she desats and goes quickly back up, then it’s considered a good day for her. So we start counting!…

Day 118: TRiloGY

By: joni marie August 1, 2015October 24, 2017

Baby Dana, Healthcare, motherhood, Parenting, Pulmonary Hypertension, womenbaby dana, children's medical center dallas, congenital scoliosis, dana gabrielle, iron baby, love, parenting, pulmonary hypertension, vsdLeave a Comment

Finally, Dana has been transitioned to a home vent called Trilogy. She was previously tried on the other called LTV but she unfortunately didn’t do well with it. This Trilogy, they say, is more suited for her because it gives her breaths the moments she breathes. We are going home with it. And it is…

Day 90: Surgery or No Surgery

By: joni marie July 4, 2015October 24, 2017

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It has been a long journey. We are still here in the hospital. Feeding and weaning her off from the 2 sedation meds is the main reason why we are here still…the intensive unit, i mean. On the other hand, we have been enjoying her being awake lately. We have been enjoying her expessions…

Day 73: Fever and Nutrition

By: joni marie June 16, 2015June 17, 2015

Baby Dana, Emotions, Love, motherhood, Parenting, Pulmonary Hypertension, Uncategorizedbaby dana, children's medical center, congenital scoliosis, lungs, pulmonary hypertension, scoliosisLeave a Comment

Update: Yesterday, Dana had a fever. No problems with her recent surgeries, trach and g-tube placement. She has had no breathing problems lately. But yesterday until today, she has fever, but she is more calm today. Her heart rate is still elevated though as high as 230 when agitated and…

Day 53: Tubes

By: joni marie May 27, 2015October 24, 2017

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Update: She will be on tracheostomy tube and g-tube. We are thankful for all your prayers. We are thankful that God has kept baby Dana in his care. Her scoliosis has progressed as she is growing, and with this is her left lung being more restricted in doing it’s function. Next week she will be…

Vent SprintS

By: joni marie May 18, 2015May 18, 2015

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Came back to Dana today from work. She has been doing well and they have been aggressively trying to wean her off everything. Today, they give her rest. They started her vent sprints 2 days ago..allowing her to breathe on her own (without the vent) for couple of minutes. She was doing okay…