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About Me

My name is Joni Marie. I am a nurse and a mother to beautiful baby named Dana Gabrielle. She was born on January 8, 2015 with severe congenital scoliosis which we found out even in utero. After 3 months that I gave birth to her, she developed pulmonary hypertension and had to be sent to the hospital.…

What is Congenital Scoliosis?

Congenital Scoliosis is a term used to describe deformity of the spine which resulted from malformation of vertebrae. Dana has currently 72 degrees curvature. Research shows that it happens early in development, about 5th or 6th weeks of formation. There has been no strong researches or evidences of it related to heredity either. Some are not…

The TRILOGY Portable Ventilator

Due to Dana’ severe spine curvature (she developed also a Restrictive Lung Disease. Her scoliosis resulted to her having left lung hypoplasia, which means her left lung has not grown . Thus, she needed a ventilator to breathe better. She is currently on a TRILOGY PORTABLE VENTILATOR 100 with the following settings:…

Travel Arsenal for a Vent Kid

By: joni marie October 25, 2017November 25, 2017

Baby Dana, congenital scoliosis, ParentingLeave a Comment

“It’s a production number” is what I usually say when asked how do we travel with Dana. At first, it seemed too much but now, we have gotten used to it. For trach and vent children, it is a must to carry eveything you need to keep the child safe. By the way, today we…

How to Pass RN Medical-Surgical Certification Exam

By: joni marie October 19, 2017October 24, 2017

Healthcare, Nursing, womenfeatured, med-surg certification, nurse, nurses, Nursing, nursing career, Passing RN-BC Exam, RN-BC2 Comments

I just passed my RN Medical-Surgical certification exam yey!! For nurses, it is always good to take extra steps in our career like acquiring certification in areas that we practice. I am currently working in Surgical Specialty Floor so I intend to take the RN Med-Surg Certification (RN-BC). Acquiring this certification can…

Prayers for Dana’s Bronchoscopy

By: joni marie September 13, 2016October 24, 2017

Baby Dana, congenital scoliosis, motherhood, Parenting, Pulmonary Hypertension, Uncategorizedbaby dana, children's medical center dallas, congenital scoliosis, Dana Gabrielle Canonigo, emotista, happiness, love, scoliosisLeave a Comment

Prayers have always worked wonders for her. She will undergo Bronchoscopy and Trach size resizing tomorrow, September 14 at 11:30 am. She is growing that she needs a little longer trach. She has currently a 3.5 Pedi Bivona Flextend TTS (cuffed) and the new one will be 4.0. When you…

7 Months and more Blessings

By: joni marie July 12, 2016October 24, 2017

Baby Dana, congenital scoliosis, motherhood, Parenting, Pulmonary Hypertension, Uncategorizedcongenital scoliosis, hopefordana, parenting101, pulmonary hypertensionLeave a Comment

Seven wonderful months at home. I can’t believe that I have not blogged that long. God has been really good to Dana. So much have happened and so many changes, but it all boils down to blessings that God has given, with a lot of help from all who prayed. We were discharged…

Retelling June 11 Out of CV ICU

By: joni marie November 8, 2015October 24, 2017

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I had to go back because as much as I honor the nurses taking care of Dana, i have not blogged my gratitude to them. I did post on my facebook. That was Day 62 when we got transferred were transferred to PICU from Cardiac ICU last night. It was dana’s home for 2 months…

Day 176: Pulmonary Floor .. (very late post)

By: joni marie November 8, 2015October 24, 2017

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I posted this on facebook on the 27th of September but haven’t blogged. Let me bring you back to that day again. Day 176: We are now in the PULMONARY floor. We are finally out of ICU which have been our home for 6 months. We are very grateful to all…