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About Me

My name is Joni Marie. I am a nurse and a mother to beautiful baby named Dana Gabrielle. She was born on January 8, 2015 with severe congenital scoliosis which we found out even in utero. After 3 months that I gave birth to her, she developed pulmonary hypertension and had to be sent to the hospital.…

What is Congenital Scoliosis?

Congenital Scoliosis is a term used to describe deformity of the spine which resulted from malformation of vertebrae. Dana has currently 72 degrees curvature. Research shows that it happens early in development, about 5th or 6th weeks of formation. There has been no strong researches or evidences of it related to heredity either. Some are not…

The TRILOGY Portable Ventilator

Due to Dana’ severe spine curvature (she developed also a Restrictive Lung Disease. Her scoliosis resulted to her having left lung hypoplasia, which means her left lung has not grown . Thus, she needed a ventilator to breathe better. She is currently on a TRILOGY PORTABLE VENTILATOR 100 with the following settings:…

Why do i need a master’s degree?

By: joni marie May 21, 2010February 22, 2013

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(november 2005) i have no specific purpose of placing this in my blog..probably, just to erase a lot of files that has been clogging my PC memory…i am applying for a degree program ( a scholarship) which required this essay ( a short one)…of which, i have to sell myself (as a leader — my…

Reality on Yeast

By: joni marie May 21, 2010February 22, 2013

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(january 2005) Did you have one particular moment in your life…you got to meet someone who you felt the magic with…so much magic that even if you only got to talk to that person, there’s an enchanted cord that binds you both…..so enchanted that even if you can’t get to that person at your most…