Day 73:  Fever and Nutrition

          Update: Yesterday, Dana had a fever. No problems with her recent surgeries, trach and g-tube placement. She has had no breathing problems lately. But yesterday until today, she has fever, but she is more calm today. Her heart rate is still elevated though as high as 230 when agitated and…

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Day 35: She Grew

  Update: She is now bigger..and that’s not because of fluids. Thank God, baby Dana has been doing well this week. The plan still is to wean her totally from the rest of her iv meds and the ventilator.  They have been slowly weaning her this week..really slow to make sure that they won’t have to…

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Day 20:  Now from the oscillator to a regular vent..We ask for Prayers.

She may be weaned tomorrow from the oscillator to a regular ventilator. Please say a prayer for her, we ask of you. They tried to bag her through the ventilator today to know what pressure they need to adjust the regular vent just incase they wean her off from the oscillator, they were happy that…

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Day 17 : Hope 

Update:  Baby Dana is slowly weaned from the oscillator (high pressure ventilator) ..from mean a pressure yesterday (sunday) of 24  and today she is down to 21. Oxygen of 62% yesterday and today its 53%. Her oxygen saturation is above 85’s. They had to reposition the et tube earlier 5am because chest xray showed it…

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Day 15: Baby Dana

Update: She has had stable vital signs so far and she  been tolerating the nurses giving her a bath or changing nappies. Her heart rate and blood pressure raises on stimulation still but very few moments that it decreases below normal. She has been given boluses of sedative pre-stimulation now they started her with oral…

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Just because the pain is unbearable, I can’t go back and re-tell the story of what my baby had been through and how we are now. We are hopeful and drawing our strength from God and from the love from family and friends. Every prayer makes us and our baby stronger. My sister has been…

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