Raising a Ventilator Dependent-Child with Congenital Scoliosis and Everything Beautiful in Between
Update: She will be on tracheostomy tube and g-tube. We are thankful for all your prayers. We are thankful that God has kept baby Dana in his care. Her scoliosis has progressed as she is growing, and with this is her left lung being more restricted in doing it’s function. Next week she will be…
Read MoreUpdate: She is now bigger..and that’s not because of fluids. Thank God, baby Dana has been doing well this week. The plan still is to wean her totally from the rest of her iv meds and the ventilator. They have been slowly weaning her this week..really slow to make sure that they won’t have to…
Read MoreShe may be weaned tomorrow from the oscillator to a regular ventilator. Please say a prayer for her, we ask of you. They tried to bag her through the ventilator today to know what pressure they need to adjust the regular vent just incase they wean her off from the oscillator, they were happy that…
Read MoreThis would probably be the hardest blog I ever wrote. Hardest in the sense that as I am blogging about my beautiful baby, I am desperately missing her so much. Dana Gabrielle. We chose that name because we knew from my ultrasound that she has a curved spine, severe that is. We already knew that…
Read MoreJust because the pain is unbearable, I can’t go back and re-tell the story of what my baby had been through and how we are now. We are hopeful and drawing our strength from God and from the love from family and friends. Every prayer makes us and our baby stronger. My sister has been…
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